Perspective on Spirituality With Palliative Care Patients

Social Workers in Health
Society of BC

 

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A Social Work Perspective on Spirituality with Palliative Clients


by Bobbi Preston, BSW, MSW Candidate
Sole Charge SW Clinical Practice Leader with FHA and member of Social Workers in Health

Over the last year, Paula Annis and I had the inspiring opportunity and experience of completing social work in health research toward completing an MSW at UBC. Paula is a Psychiatric SW and ASTAT Counsellor employed with the FHA. The preliminary results of our research, entitled “Social Work Perspectives on Spirituality with Palliative Clients: A Qualitative Study”, were presented last spring 2005 at the BC Hospice Palliative Care Association Conference in Richmond and in a Poster Presentation at the Canadian Association of Psychosocial Oncology Conference in Victoria.

Research studies indicate that spirituality is a very important consideration in palliative care and may be important to a dying person’s quality of life and ability to cope with dying. Especially absent from the literature was the social work perspective of spirituality as it relates to palliative care. Yet contrary to the medical model, the field of social work has historically used an holistic approach, focusing on human needs and conditions beyond the physical. We proposed that social workers may have an important perspective to offer on spirituality that is not reflected in existing literature. Furthermore, since social workers are employed in practically every health care setting, including those that provide palliative care, they may offer unique and valuable insights that are currently lacking yet need to be incorporated into the study of spirituality and palliative care.

We embarked on a journey to capture perspectives of social workers on spirituality and their understanding or experiences of their role in addressing spiritual needs of palliative clients. We had an overwhelming response of interest in the topic, as well as validation of the need for research in this domain. Our focus group thoughtfully and articulately shared their remarkable experiences and insights.

The social work participants reiterated previous findings, as well as clearly highlighted interesting distinctions. Previous studies indicated confusion around the terms religion and spirituality, as well as confusion due to the lack of a singular universal definition, believing this is an obstacle toward assessing and addressing spirituality. Our most significant finding was that these social workers clearly differentiate between the terms and assume the potential for addressing issues related to spirituality irrespective of whether the person is religious or not.

The shared perspective was that spirituality encompasses connectedness to relationships, life events, humanity and nature, a source of power greater than oneself, a search for meaning, purpose and peace as well as synchronicity and a perception of orchestrated meaning on a higher level. The participants’ definition of spirituality was very broad. Further, they welcomed the challenges that were presented by the ambiguous and undefined nature of facilitating the exploration of spirituality. They recognized that it is a process and a journey and they felt privileged to be a part of it.

The group unanimously assumed a spiritual essence in the whole person aware this may not reflect the experiences of their clients. They respected that clients may not be open to addressing a spiritual dimension. Moreover, they were at ease tailoring their interventions to reflect the unique meaning that spirituality has played in their clients’ lives and dying processes. They appreciated that each person experiences spirituality in their own way.

“…we tend to get more involved with …spirituality when people are struggling with it and trying to figure out the connection – that’s when it comes to be expressed – when it’s being questioned.”

Rather than a static or a one-way interview, the group demonstrated an approach to spirituality and assessment that is a dynamic, evolving, and, sometimes, intimate process of exploration. They demonstrated that they do address and assess spirituality with palliative clients. The themes that emerged were spiritual awareness, the therapeutic use of self in providing a safe environment for exploration, client centredness, creativity, resourcefulness, and flexibility. They expressed openness to ongoing learning and critical thinking around spirituality and the human experience. For the most part, the literature reflects that healthcare professionals experience discomfort in these domains. These social workers demonstrated they possess a comfort level with spirituality, unknowns, silence, suffering, and dying.

In sum, we were able to conclude that the social work focus group identified spirituality as an essential consideration for many of their palliative clients and that it is an inherent component of social work practice. The group also affirmed that the interdisciplinary team shares responsibility in providing spiritual care.

We were privileged to be part of this study and grateful for the expertise and commitment of our participant social workers. We wanted to share the discussion with you to encourage further discussion, as well as further research.

 


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